Thalassemia is a disease in which there is a continuous deficiency of blood in the body. Our blood has a protein known as hemoglobin which supplies the oxygen to the all cells of the body. In Thalassemia the production of hemoglobin is less than what is required in the body, which causes the anemia, in severe cases the person needs multiple blood transfusions. the specific part of hemoglobin that is affected (usually either alpha or beta), or the severity of thalassemia, which is noted by words like trait, carrier, intermedia, or major.
When thalassemia is called alpha or beta, this refers to the part of hemoglobin that isn’t being made. If either the alpha or beta part is not made, there aren’t enough building blocks to make normal amounts of hemoglobin. Low alpha is called alpha thalassemia. Low beta is called beta thalassemia.
Symptoms of thalassemia
The symptoms of thalassemia can vary. Some of the most common ones include:
1.bone deformities, especially in the face
3.delayed growth and development
4.excessive tiredness and fatigue
5.yellow or pale skin
Not everyone has visible symptoms of thalassemia. Signs of the disorder also tend to show up later in childhood or adolescence.
Nutritional deficiencies are common in thalassemia, due to hemolytic anemia, increased nutritional requirements, and morbidities such as iron overload, diabetes, and chelator use.
Patients should be evaluated annually by a registered dietitian regarding adequate dietary intake of calcium, vitamin D, folate, trace minerals (copper, zinc, and selenium) and antioxidant vitamins (E and C). Annual nutritional laboratory testing should include albumin, 25-hydroxy vitamin D, fasting glucose, fasting plasma zinc, serum copper, ceruloplasmin, serum selenium, alpha and gamma tocopherol, plasma ascorbate, and serum folate.
Recommendations for dietary supplementation should be made as indicated by nutritional history, complications of the disease, and, in children, growth status. Typically multivitamin supplementation without iron is suggested
Treatment options for thalassemia
The treatment for thalassemia depends on the type and severity of disease involved. Your doctor will give you a course of treatment that will work best for your particular case.
Some of the treatments include:
2.bone marrow transplant
3.medications and supplements
4.possible surgery to remove the spleen or gallbladder
Alcohol consumption and cigarette smoking are to be discouraged. Alcohol potentiates the oxidative damage of iron and aggravates the effect of hepatitis B and C on liver tissue.Cigarette smoking affects bone remodeling and is associated with osteoporosis.
Home remedies for Thalassemia
1.A lot of people suffering from Thalassemia experience weakness of the bones, so you need to eat calcium rich food. To get vitamin D, take the sunbath of 5-10 minutes early in the morning when sun rays are not so strong.
2.Tulsi juice, Take 4-5 teaspoon of fresh Tulsi juice to get relief in Thalassemia. You can take it anytime in the day.
3.Folic acid, Eat food rich in folic acid like lentils, bananas, soy products, beetroot, and sweet potatoes.
4.Do not start any multivitamin without asking your doctor.
5.Wheat Grass Juice, Wheat grass juice has been found extremely beneficial in the cases of Thalassemia. Start taking wheat grass juice on empty stomach and in evening.
6.Pearl calcium (moti pisti), This herbal remedy is a wonderful solution to prevent the symptoms of thalassemia. It may be taken regularly to help in the formation of healthy RBCs. It also helps in making healthy protein for the formation of hemoglobin. It reduces the risk of developing thalassemia. It may be taken regularly to prevent the complications of the disease
7.Giloy, It is a useful herb that has been used traditionally for the treatment of any kind of blood disorders. It helps to get rid of anemia and makes the body healthy. It helps in the formation of RBCs. It increases the blood supply to all parts of the body and helps in the normal functioning of all the body organs.
Thalassemia is a serious illness that can lead to life-threatening complications when left untreated or undertreated. While it’s difficult to pinpoint an exact life expectancy, the general rule is that the more severe the condition, the quicker thalassemia can become fatal.
If you have thalassemia, your outlook depends on the type of the disease. People who have mild or minor forms of thalassemia can typically lead normal lives. In severe cases, heart failure is a possibility. Other complications include liver disease, abnormal skeletal growth, and endocrine issues. Your doctor can give you more information and will also explain how your treatments can help improve your quality of life or increase your lifespan.